A Purple Butterfly That Conveys Everything Simply and Sensitively in the NICU

Discenza, Deborah MA

For further information, please contact: Deborah Discenza, MA, PreemieWorld, LLC, 5605 Eastbourne Drive, Springfield, VA, 22151, E-mail: [email protected]

Deb Discenza is the founder and CEO of PreemieWorld, LLC, a patient education company and the co-author of “The Preemie Parent’s Survival Guide to the NICU,” and the publisher of PreemieWorld News for parents and pros. The book can be purchased in bulk for NICUs at a discount. Learn more about them at PreemieWorld.com.

Neonatal Network 43(4):p 251-255, August 01, 2024. | DOI: 10.1891/NN-2023-0075

This is an interview with one of the founders of The Butterfly Project where a simple purple butterfly on an infant’s incubator or cot can alert others in the NICU that this infant had a sibling who died, thereby guiding a respectful, more sensitive conversation with parents. The program has taken hold throughout the world.